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Matthew was born with a rare cranial birth defect called metopic synostosis, a condition that affects one in 15,000 babies, according to data from Boston Children’s Hospital.

His metopic synostosis caused a premature hardening of his cranial sutures, the joints between the seven cranial bones.

Dustin Price said some children with metopic synsyosis suffer severe brain damage or a painful death.

Metopic synostosis is a type of craniosynostosis, a deformity found in infants that changes the growth pattern in their skull.

But he also has a condition called Metopic Synostosis, and if left untreated it could result in blindness, seizures, brain damage, or even death.